Good News To Go Around...

Well, we have had a great week. Aubrey went to her pediatric eye doctor this last Wednesday. He actually said her optic nerves appeared less swollen....yeah, less swollen. This is the first time since hospitalization that her nerves have looked better. He also said her 6th nerve palsy (cross-eyedness) is gone! So we do not see him for 2 weeks...Yay!!! Aubrey also had a ultrasound of her neck vessels on Thursday to check flow...make sure no other clots. We were afraid she would have to be sedated because she is so gun-shy now. But Jared was able to be there and we didn't need the stupid sedation. Preliminary reports shows good flow to all major vessels in the neck (int jug, ext jug, and carotids). This is a very good thing. We are waiting for blood work results from her hematologist. Hopefully we are on the down hill slide of this whole ordeal. Keep you posted on any new news. Ultrasound for the new baby on Monday...then I will finally have a due date...YAY!!!

Not Just One Miracle, But TWO

Well, when we were at the hospital we knew we had been touch by one miracle with Aubrey's recovery...but we didn't know we had been touched by two miracles. Yes, Aubrey is going to be a big sister!!! We found out for sure the morning after we brought Aubrey home. Yeah, wow is about right. We are not sure my exact dates yet, but I'm around 10-11 weeks. I have been miserable...so nauseated and tired. It has definitely been a rough month with Aubs recovery and being sick. Jared has been amazing. Aubrey is so stoked. She talks about the baby all the time and can't wait for it to be here. We had our first prenatal appt last Friday. Aubrey was a bit nervous about the nurse touching mom. But she was uber excited about hearing the baby's heart beat. It was 176. We have an ultrasound in a week and half to help determine the dates. So now Aubrey and I are really going to appts all the time. Although we have definitely felt overwhelmed by the whole process, we feel so blessed. Keep you up to date on the new baby and Ms. Aubrey.

Baby Noah and Aubrey

Hold on...we are coming Noah!


BFF

Finally Some News

Well, Aubrey had her follow-up MRI last Monday (the 16th). It took a week and half, multiple phone calls, and one appt to finally get an answer. It appears that her sigmoid sinus clot is nonobstructive!!! The hematologist explained that there appears to be some flow through the clot. There are still some things that we are investigating. First, we had to have 10-12 vials of Aubs blood drawn to test for clotting disorders. The blood was taken yesterday...she was sooooo brave. Second, we have an ultrasound of the neck vessels to ensure blood flow through the jugular and carotids next week. If those test are negative for disorders and other clots than we don't have another MRI until mid-January. Hopefully this the case...then we will be on our way to a full recovery. We have been very busy with visitors lately. One of my best friends from nursing school came to Lubbock with her 4 month old son Noah. They surprised me for my 30th birthday early. It was awesome. Aubrey was very enthralled with the diaper changing..poor Noah. Aubrey also graduated from physical therapy last week!!! Mimi and Pops were here for part of Thanksgiving week and now my mom and nephews are here. She has been having a blast. Running everywhere of course. I hope to all that read this have a blessed Thanksgiving. We know that we are!!! Yay God!!!

Corn Maize

Reschedule, Reschedule, Reschedule

Adaptability is the name of the game. So we went to the eye doctor on Monday the 9th. The optic nerves were still swollen. Her degree of cross-eyedness was the same. The ultrasound that he wanted was scheduled for this Wednesday the 11th. He thinks the ultrasound can rule out Drussens, which are crystals in the eye that cause the nerve to appear swollen. If the ultrasound is positive for Drussens then we treat conservatively and continue to monitor her. If the ultrasound is negative then we start her on Diamox...a diuretic that works on the specific fluid in the brain. Hoping this would decrease some pressure which would decrease the swelling of the optic nerve. So we had to move around this Wednesday's PT appt for the ultrasound of Aubrey's optic nerve to Thursday. Yeah, the ultrasound did not happen. We practiced and role played, but in the end she was too nervous and scared to do it. So we are now moving up our previously scheduled repeat MRI on November 24th to November 16th. Now I have to reschedule the 2 appts that were already scheduled for Monday the 16th. End scenario, we repeat the MRI this coming Monday. It should tell us two things; one, is the thrombus resolving and two, are there Drussens present. So I will try to keep you posted on those results as I know them. I also have to apologize if I am repeating myself profusely....I forget who, what, and when I have told people stuff. Hope all is well with everyones families. Here is a picture of Aubrey and Jared on the "cow train" at the Corn Maize....she loved it!

Sheeeee's Baaaaack...In Her Room

What A Difference A Month Can Make

Well, we have made it to the month mark after Aubrey's accident with remarkable progress. We were very cautiously optimistic at the hospital about her outcome. I don't think any of us thought she would be doing this well. Yay God!!! She tested out of speech therapy on Wednesday...she blew their test out of the water. It is so cute though...she keeps asking when Philip (OT) and Carrie (ST) are coming back to play. She is so sweet. We also moved Aubrey's mattress from our bedroom floor to her bed frame in her room on Wednesday. She ran all over the house because she was so excited about being back in her room. We purchased a bumper for her bed to cover the wood slats...Jared and I are still nervous nellies. I think in a couple of weeks she will ask us leave so she can fall asleep...we are currently staying in the room until she falls asleep. We are planning on going to the corn maze tomorrow!!! Food and games...we are there!

Making Progress

Aubrey went to the eye doctor on Monday. He said that her degree of crossed-eyeness (6th nerve palsy) was less and seemed to be improving. He also thought her eye nerves were possibly a little more swollen. He didn't want to scan (MRI) her yet, but thought we should ultrasound her optic nerve. Apparently, some children have crystals in the back of the eye that can make the eye nerve appear swollen called Drusens. The ultrasound of the eye will show these possible crystals. The results of this exam will help the eye doctor know if the swollen nerve are from a pre-existing condition or only from the head injury. We have our ultrasound scheduled for Wednesday, November 11th. I must say our eye doctor is amazing...he definitely has a gift. Aubrey's occupational therapist, Phillip, came to the house today for her evaluation. Aubrey tested out of occupational therapy!!! He thought she still needed to work with the PT to work on her trunkal stability. Our PT comes on MWF at 930 am. Tomorrow is our first meeting with the outpatient speech therapist. I have a feeling she will also test out of speech too. Here are some pictures from Halloween from my camera. I will post more if I ever get my pictures from my mom! Have a great week all. Oh yeah, we went to the library today....we are slowly trying to get back to our old routine.

Home Sweet Home

Well, we have made it back to Texas. We had a great time in Wichita. Way too busy, but a great time. Our Halloween cast was a hit. Everyone loved the real-live (miniature) Toto! Aubrey had a blast with her friends and cousins. She did well with the flights and sleeping arrangements. We have 3 appts tomorrow...no rest for the wicked...and unpacking to finish. I hope to have pics and videos online by tomorrow night! There is no place like home, there is no place like home, there is no...

Clicking Our Heels!!!

We are clicking our heels because we are headed home to Wichita tomorrow morning. We got the OK from our doctors yesterday. We had to wait 1 hour for our eye doctor appt and 1.5 hours for our neurosurgeon appt. But it was well worth it because they said we could go!!! The eye doctor said her cross-eye degree is the same and her eyes' nerves are still "puffy". No change at this time. He wants to see her next Monday. Her neurosurgeon is impressed with her progress. He really likes her. He thinks we will get another scan in 4 weeks if she continues to improve. We will see him next Monday too. Aubrey and I have been home the last two days with just ourselves (Dad has been at work until 7 each night). We have done real well. I am still not packed, but oh well. Eventually it will get done I guess. So excited to go home...I could pee my pants. Thanks again for all your prayers and crossed fingers. I should have pictures loaded from the Halloween weekend by next Monday. We (Aubrey, Mom, Braden, Hunter, Nathan, Keith, Sophie (the miniature Yorkie), and I) will be the cast of Wizard of Oz if all works out! Have a blessed Halloween Weekend everyone.

A Weekend of Play

Well a weekend of play was had at the Scott household. Pops came to Lubbock on Saturday after work. I went to the spa for a massage and the crew (Mimi, Pops, Jared, and Aubrey) went to the park. They had a blast feeding the geese and playing on the playground. Today (Sunday) we went to the Legacy park for a breakfast picnic with Mimi and Pops. Good times were had by all. Then we fixed a few things around the house before the grandparents left. Most importantly, Aubrey and I had a GREAT nap. Tomorrow is Aubrey's first day with only one person monitoring her. It could be a busy and tiring day for me. We also have PT in the morning and an appointment with the eye doctor. We are hoping to meet with the neurosurgeon as well. Everyone is crossing their fingers that we get the "OK" to fly home to Wichita tomorrow. Here are some cute pictures of all the park fun. Enjoy!

Swinging the Day Away

Here just a picture of Aubrey swinging...still her favorite past time. Thought it would be reassuring for all to see her in her swing again. Enjoy everyone!

Lets Get Physical

We had a good day yesterday (Friday). Jared got off work early and was able to be home for her first physical therapy session. Carolyn, PT, came over around 930 am and worked Aubrey hard. First and foremost, we showed her our new train set. Then we practiced throwing and catching the ball with our new toy from Kristen and the Wichita Gang. Finally, Aubrey showed her how she can walk, crawl, climb, and bounce on her exercise ball! She was very impressed with Aubrey. We will see Carolyn every MWF for therapy. Aubrey said it was OK for Carolyn to come back and play. Aubrey is really taking off these last two days. She is wanting to be independent again...we are trying to allow her to do as much as possible...but we are sooo nervous she'll fall hit her head again. Our next issue to tackle is Aubrey and I exercising off all the goodies we have received from family and friends. I mean cookies, candies, popcorn balls, and more! We both could be considerably bigger by the Holiday Season. We head to the doctors this Monday and should know more about the plan for the next few weeks. We also hope to head home next week to Wichita for Halloween....only time will tell. I do have to say Aubrey has been very patient and sweet through this whole experience. We are very blessed.

Divine Intervention

They say that things work out for a reason...and I believe that whole-heartedly. Yesterday (Tuesday) we had quite a confusing and frustrating day. We were scheduled for an MRI at 100pm. This means nothing to eat in the morning except for clear liquids. And if anyone knows Aubrey that is not happening. She is a GREAT eater. So Mimi and I distracted her all morning with shopping and driving by parks (it was raining, so no swinging today). We eventually headed to the hopsital to check in for the MRI. The insurance coverage was causing quite a mess. Long story short, the rn that ordered the test had done the paperwork but the admitting people weren't calling her. The admitting staff were trying to send us to the other hospital or we would have to pay for the out-of-network MRI. After multiple, mutiple calls and stern discussions with supervisors we had a spot available for the MRI at UMC (the other hospital, where Jared works). We took Aubrey over there with our orders in hand. UMC was great. They admitted us quickly and took great care of us. The divine intervention becomes evident when we learn the neuroradiologist we already wanted to add to Aubrey's case was the radiologist working at UMC that day. YAY!!! After a long day of NPO staus and running around we got awesome pictures of Aubrey's brain and clot. The neuroradiologist reveiwed all previous scans and the most recent one with Jared and I in his office. We are waiting for all the doctors on Aubrey's case to talk to one another today. We don't believe there will be much change in her plan of care. We may have to do another MRI sooner than we thought (in 3weeks instead of 6-8 weeks). She has done great today! She is moving around her train set by herself (with us hovering her) and walking small distances on her own. The divine intervention was very tiring yesterday, but definitely worth the work. God blessed us real good!

The Ups and Downs

We had two appts today (Monday). The first appt today was with the neurosurgeon (NS), Dr. Nagy. He thought she seemed to be progressing nicely. He also thinks she is crazy cute. We showed him home videos of Aubs from the weekend. He was very glad to see her making such good progress. She waved and walked for him in the office. Her Mimi said "God Bless Dr. Nagy" and Aubs said "God bless you Dr. Nagy". He then said, "God bless you Aubrey". We felt good leaving there. Mimi, Aubrey, and I went to our favorite park for swing time. It was a blast. Then we headed to the eye doctor, Dr. Cockings. He examined her eyes initially and noticed the nerves may be more swollen. So he had to dilate her eyes. She hates that bad! After fighting him to look at her dilated eyes, he confirmed that the nerves at the back of her eye were more swollen than last Friday. He called Dr. Nagy. We had to go back to Dr. Nagy office. We then scheduled a MRI for tomorrow since she had recently eaten. We are assuming they are wanting to check the current clot size and it's location. Also making sure nothing else is affecting the eye nerves. We are making sure there isn't anything that needs prompt intervention. Her MRI is scheduled for 100pm. We have to be checked in by 1100am. Again she will receive general anesthesia for the case...boo. Physical therapy came to evaluate her today too. The therapist was amazed by Aubrey's progress and strength. Physical therapy will come 2-3 times a week. All and all, we have only a few milestones to practice and achieve before we are back to normal. On a lighter note, we purchased a train set for Aubrey at home. It is awesome. She practices her balance, walking, and hand-eye-coordination without knowing it. The train set and swing set have been our saving grace. Keep the prayers coming everyone and thank you!

Coming home!!!

My name is Kelli Scott. I am starting this blog to keep everyone updated on our daughter progress since her accident on 10/05/09. We are so excited to announce the arrival of Aubrey back home. We were discharged on Friday, 10/16/09, at 630 pm. Katy Hoke took half the presents while stopping at Walmart for the necessities, I went to Frazoli's drive-thru with the other half of the gifts, and Jared took Ms. Aubrey home. She was SOOOOO excited to be home. Last night she walked with assistance from her room to the kitchen and back to get Madie a treat. She slept on her mattress on the floor last night and did great. This morning she blew us away with army crawling and then crawling with her head up. She also asked to go to the potty (we were potty training before the accident) and did! Then, she actually sat up in her swing and swung for 20-30 minutes with holding her neck up herself. Just crazy. We are making appointments for PT, OT, and ST this weekend. I will try to keep you updated on the amazing progress. Thanks everyone for your prayers and thoughts. WE ARE SO GRATEFUL AND THANKFUL FOR AUBREY'S PROGRESS IN HER RECOVERY. YEA GOD!!!