Thursday, November 26, 2009
Not Just One Miracle, But TWO
Well, when we were at the hospital we knew we had been touch by one miracle with Aubrey's recovery...but we didn't know we had been touched by two miracles. Yes, Aubrey is going to be a big sister!!! We found out for sure the morning after we brought Aubrey home. Yeah, wow is about right. We are not sure my exact dates yet, but I'm around 10-11 weeks. I have been miserable...so nauseated and tired. It has definitely been a rough month with Aubs recovery and being sick. Jared has been amazing. Aubrey is so stoked. She talks about the baby all the time and can't wait for it to be here. We had our first prenatal appt last Friday. Aubrey was a bit nervous about the nurse touching mom. But she was uber excited about hearing the baby's heart beat. It was 176. We have an ultrasound in a week and half to help determine the dates. So now Aubrey and I are really going to appts all the time. Although we have definitely felt overwhelmed by the whole process, we feel so blessed. Keep you up to date on the new baby and Ms. Aubrey.
Finally Some News
Well, Aubrey had her follow-up MRI last Monday (the 16th). It took a week and half, multiple phone calls, and one appt to finally get an answer. It appears that her sigmoid sinus clot is nonobstructive!!! The hematologist explained that there appears to be some flow through the clot. There are still some things that we are investigating. First, we had to have 10-12 vials of Aubs blood drawn to test for clotting disorders. The blood was taken yesterday...she was sooooo brave. Second, we have an ultrasound of the neck vessels to ensure blood flow through the jugular and carotids next week. If those test are negative for disorders and other clots than we don't have another MRI until mid-January. Hopefully this the case...then we will be on our way to a full recovery. We have been very busy with visitors lately. One of my best friends from nursing school came to Lubbock with her 4 month old son Noah. They surprised me for my 30th birthday early. It was awesome. Aubrey was very enthralled with the diaper changing..poor Noah. Aubrey also graduated from physical therapy last week!!! Mimi and Pops were here for part of Thanksgiving week and now my mom and nephews are here. She has been having a blast. Running everywhere of course. I hope to all that read this have a blessed Thanksgiving. We know that we are!!! Yay God!!!
Thursday, November 12, 2009
Reschedule, Reschedule, Reschedule
Adaptability is the name of the game. So we went to the eye doctor on Monday the 9th. The optic nerves were still swollen. Her degree of cross-eyedness was the same. The ultrasound that he wanted was scheduled for this Wednesday the 11th. He thinks the ultrasound can rule out Drussens, which are crystals in the eye that cause the nerve to appear swollen. If the ultrasound is positive for Drussens then we treat conservatively and continue to monitor her. If the ultrasound is negative then we start her on Diamox...a diuretic that works on the specific fluid in the brain. Hoping this would decrease some pressure which would decrease the swelling of the optic nerve. So we had to move around this Wednesday's PT appt for the ultrasound of Aubrey's optic nerve to Thursday. Yeah, the ultrasound did not happen. We practiced and role played, but in the end she was too nervous and scared to do it. So we are now moving up our previously scheduled repeat MRI on November 24th to November 16th. Now I have to reschedule the 2 appts that were already scheduled for Monday the 16th. End scenario, we repeat the MRI this coming Monday. It should tell us two things; one, is the thrombus resolving and two, are there Drussens present. So I will try to keep you posted on those results as I know them. I also have to apologize if I am repeating myself profusely....I forget who, what, and when I have told people stuff. Hope all is well with everyones families. Here is a picture of Aubrey and Jared on the "cow train" at the Corn Maize....she loved it!
Friday, November 6, 2009
What A Difference A Month Can Make
Well, we have made it to the month mark after Aubrey's accident with remarkable progress. We were very cautiously optimistic at the hospital about her outcome. I don't think any of us thought she would be doing this well. Yay God!!! She tested out of speech therapy on Wednesday...she blew their test out of the water. It is so cute though...she keeps asking when Philip (OT) and Carrie (ST) are coming back to play. She is so sweet. We also moved Aubrey's mattress from our bedroom floor to her bed frame in her room on Wednesday. She ran all over the house because she was so excited about being back in her room. We purchased a bumper for her bed to cover the wood slats...Jared and I are still nervous nellies. I think in a couple of weeks she will ask us leave so she can fall asleep...we are currently staying in the room until she falls asleep. We are planning on going to the corn maze tomorrow!!! Food and games...we are there!
Tuesday, November 3, 2009
Making Progress
Aubrey went to the eye doctor on Monday. He said that her degree of crossed-eyeness (6th nerve palsy) was less and seemed to be improving. He also thought her eye nerves were possibly a little more swollen. He didn't want to scan (MRI) her yet, but thought we should ultrasound her optic nerve. Apparently, some children have crystals in the back of the eye that can make the eye nerve appear swollen called Drusens. The ultrasound of the eye will show these possible crystals. The results of this exam will help the eye doctor know if the swollen nerve are from a pre-existing condition or only from the head injury. We have our ultrasound scheduled for Wednesday, November 11th. I must say our eye doctor is amazing...he definitely has a gift. Aubrey's occupational therapist, Phillip, came to the house today for her evaluation. Aubrey tested out of occupational therapy!!! He thought she still needed to work with the PT to work on her trunkal stability. Our PT comes on MWF at 930 am. Tomorrow is our first meeting with the outpatient speech therapist. I have a feeling she will also test out of speech too. Here are some pictures from Halloween from my camera. I will post more if I ever get my pictures from my mom! Have a great week all. Oh yeah, we went to the library today....we are slowly trying to get back to our old routine.
Sunday, November 1, 2009
Home Sweet Home
Well, we have made it back to Texas. We had a great time in Wichita. Way too busy, but a great time. Our Halloween cast was a hit. Everyone loved the real-live (miniature) Toto! Aubrey had a blast with her friends and cousins. She did well with the flights and sleeping arrangements. We have 3 appts tomorrow...no rest for the wicked...and unpacking to finish. I hope to have pics and videos online by tomorrow night! There is no place like home, there is no place like home, there is no...
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